Well, the doctor who ordered the CT scan and told her nurse to tell me I have a hernia finally called to tell me that I should have surgery as quickly as possible. This was after I told my primary care physician that I hadn't heard from her, and also after I faxed her a letter with a status report on my discussions with my IBD expert in New York. And after her nurse said she would call me -- four days ago.
She complained because the gastroenterologist in New York isn't returning her calls. I explained (again) that I've been in touch with the New York doctor, and that she's started me on a new medication. I think she was annoyed that the New York doctor responded to me rather than to her, and that I seemed to have better information than she does. So I said "I do my own care coordination." She said "quite effectively, too!"
Why is this annoying to a doctor? Shouldn't she be glad that I take the load off of her shoulders and make sure all of my doctors are on the same page? She complains that the doctor in New York doesn't get back to her, but also complains that I've gotten through to the doctor myself? What would be the right thing for me to do? I guess just sit patiently and wait and do as I'm told when I'm told?
I really don't understand this approach to practicing medicine, an approach that involves a passive patient who does what she is told and nothing more. When was this doctor planning to tell me that, in her opinion, I need to have the hernia repair done quickly? If she's all that worried that bowel will get stuck in the hernia (which is really a hole in the abdominal wall) and I will need emergency surgery, why didn't she or her nurse tell me that on Monday?
Well, I'm not ever going to be the passive patient she wants me to be. I don't do passive. It's my body, my problem, my pain, my hernia.
Anyway, now I have an appointment to see the surgeon on July 6. I have to go to Nashville on August 8, so I can't have surgery before that, but I suspect it will get scheduled shortly after that.
And for those of you who were with me for my last surgery, I will blog it all again -- every detail -- so you can see how many times the system messes up, whether it be my insurance or an infection or anything else that can go wrong.
I think perhaps my annoyance is a way for me to deal with the sadness. I don't want to have surgery again. It's barely been a year since the last one. The whole thing stinks.
I think I'll go have a good cry. Jennifer