Monday, June 10, 2013

Maintaining a Legacy

As you are aware, Jennifer Jaff passed away in September of 2012. As the founder of Advocacy for Patients with Chronic Illness, Inc., she left behind not just an agency that she created and nurtured, but a set of ideals and practices that have become the very foundation on which the agency rests. What I have learned about Jennifer is that her life was truly dedicated to helping others in a way that generated not only a fierce loyalty but an incredible network of individuals who helped support the very work she spent her all too short life devoted to doing. The types of accolades I hear about her where things like: 

“She was a super hero for my son, he truly felt like giving up in school until she came into his life.”

“Jennifer was always available and even if there was nothing she could do legally she listened and that truly made a difference.”

“If it wasn't for Jennifer helping me with my insurance appeal I would not have the dignity and quality of life I have now, I can never forget her.”

“What can you say about a total stranger who takes the time to listen, help and truly really care about someone they never met? Is saint too strong? Is hero inappropriate? I don’t know but she was both to me!”

These and so many more wonderful things were said about Jennifer by everyone I meet who knew her or who were in some way touched by her zeal for advocating. What an incredible legacy to leave behind, what a life truly well lived and how powerful a statement that you were someone's hero!

It is unfortunate that I never had the pleasure of meeting Jennifer Jaff. However, I am sure if I had, I would be another of the multitude of individuals who were loyal and dedicated to her vision and mission at Advocacy for Patients. Instead, I have been tasked with the Herculean mission of continuing her legacy, and, in very real terms, of helping those who are truly vulnerable in our society – the chronically ill who often suffer in silence and expect little in terms of understanding from others.

By now you must be asking yourself: Who is this person? So let me tell you a little about myself. I, like Jennifer, have spent most of my adult life advocating for those less fortunate or those who simply have a harder time for one reason or another. I have come to Advocacy with 27 years of experience in social services and management, dedicating many years to working with disadvantaged people as a professional in social services and health care, as well as the law. In the late 1980’s, I left a successful career working at a mutual fund company on Wall Street to begin my career in social services, working for several New York City agencies dealing with concerns such as homelessness and literacy. I had decided that this was truly my life's work – helping those in need. As a result, I decided to pursue a Master’s Degree in Education and Rehabilitation Counseling and entered the health care field, focusing on the mentally and physically disabled. As Administrator on Duty at Jacobi Medical Center, as well as Director of Rehabilitation at North Central Bronx Hospital Center, I gained extensive experience in hospital management and patient advocacy. A growing desire to advocate for disadvantaged people led me to attend law school, and I obtained my J.D. degree from the City University of New York School of Law, whose motto spoke to me completely: Law in the Service of Human Needs.

Upon graduating from law school, I served as a Prosecutor for the Bronx District Attorney's Office for over three years. While there, I worked in the Domestic Violence and Sex Crimes Unit, prosecuting cases and advocating for the rights of victims. I continued my work with poor and indigent individuals as a legal services professional with Legal Services of the Hudson Valley (LSHV), where I handled a diverse caseload of domestic violence, custody, housing and disability matters. While at LSHV, I became the Deputy Director and program-wide Domestic Violence Coordinator. In addition to my legal representation of clients, I was responsible for developing a training and evaluation program for staff attorneys and other stakeholders within the domestic violence prevention and legal field. In 2007, I went to work at the New York State Office for the Prevention of Domestic Violence, an Executive level agency on policy, among other functions. At OPDV, I was the Director of Public Policy and Administration. While there, I was responsible for the development and implementation of statewide training of law enforcement, the judiciary, advocacy agencies and other stakeholders. With my team, I successfully wrote a million dollar grant to develop a one of a kind, online, web-based training for police officers in domestic violence case handling. In addition, I wrote policy for the State of New York in the areas of officer-involved domestic violence, probation, parole and victim advocacy agencies. In my role as the Director of Administration, I was responsible for successfully steering the agency through the recent fiscal crisis.

What does this all say, other than I obviously wanted to help others? It means I hold in my heart the same passion and dedication that Jennifer Jaff had for helping others and championing those  in need. It says that, in hiring me, the Board of Directors at Advocacy thought that I could and would keep the agency and Jennifer’s legacy alive and fully operational. I am so honored to walk in the footsteps of someone so well respected and so highly thought of. I will do everything within my means to keep her memory, legacy, and mission alive and well, and I invite you all to please help us do the same in any way you know how: refer clients, spread the word that we are here to help, and, where possible, please donate, as we count on your support to make this all happen.

Eileen F. Swan, Executive Director

Monday, September 24, 2012

NY Times Article on Jennifer

We want to thank everyone for the kind and loving messages. Jennifer's impact was far greater than she ever knew. There was a touching article in the NY Times today which we wanted to share here, for all of our followers.

We greatly appreciate everyone's understanding and patience during this difficult time. The daily blog posts will have to be postponed, but check back for updates about Jennifer's memorial service.

Thank you!

Wednesday, September 19, 2012

Heavy Heart



It is with deep sorrow that we announce the untimely passing of Jennifer Jaff, Esq, Founder and Executive Director of Advocacy for Patients with Chronic Illness, Inc. Jennifer conceived of and founded Advocacy for Patients because of her extraordinary passion and commitment to ensuring equal rights for those living with chronic illness.  She dedicated her life and career to improving the quality of life for others based on her own experience with Crohn’s disease. 

Her advocacy on a personal level with individuals, in chronic illness arenas for larger disease populations, and in global forums for local and national health care reform was unparalleled in its sophistication, conviction, judiciousness, and honor. Jennifer believed fiercely that this cause was a civil rights issue, and her belief in the worth and rights of every individual with a chronic illness set precedents and models for equality nationwide.  Her goal to increase awareness of the need for and the power of advocacy for chronic illness touched all of us who knew her as well as the population at large. She always worked with amazing energy, grace, fortitude and resolve.

It was Jennifer’s aim to never refuse an opportunity to help someone in need and we know that there are many clients and companies with whom she was working at the time of her death. We appreciate the patience of our clients, friends and partners as the Advocacy for Patients staff works to contact those immediately affected by this tragic and unexpected loss and to develop plans for the future. 

We know that Jennifer will always be remembered for her dedication and the actions she took in the pursuit of justice for those with chronic illness.  Be assured that the Board of Directors and the Staff of Advocacy for Patients will do everything in our power to promote Jennifer’s great legacy.

We are informed by Jennifer’s family that any funeral arrangements will be private, but we are planning a memorial gathering for Jennifer in the next few months and we will announce the date, time and place once those details are final.  For those who want to donate gifts in her memory, please send them through our website, or by mail to Advocacy for Patients with Chronic Illness, Inc., 195 Farmington Avenue, Suite 306, Farmington, CT 06032.

Thank you.

Carol Fain Walters
President

Wednesday, September 12, 2012

Mini-Break

I've waited all summer for a time when I could take a few days off.  There was always something in the way -- until now.  So I'm taking a couple of days off from blogging (and from life).  I'll be hunkered down with the most purrrrrfect Ms. Emily, a couple of good books, a few good movies, and nothing else.

But before I go, a bit of good news to leave off on -- the number of Americans without insurance has fallen to its lowest rate since 2008, all due to health reform, mostly due to coverage of people under age 26.  If only the American people will let this play out to 2014, things really are going to get better.  Here's the proof that it's already happening. 

Have a great week-end.  See ya Monday!  Jennifer

Hump Day Headlines

 The Institute of Medicine issued a report saying there's a TON of waste and opportunity for savings in the health care system.  The big recommendation is payment for quality outcomes rather than for each individual service.  We have to do something -- that much, we all agree on.

Indeed, health care costs nearly doubled for workers since 2002.  In what industry can you double your prices every 10 years without changing the product, or even cutting back on it?  And you don't think we have to do something to regulate insurance companies?  Indeed, increased rate regulation and tools like the medical loss ratio slowed the growth in premium prices to about 4% -- well below last year's increase and well below the decade's average of 8%.

Figures on the number of uninsured Americans should be released today.  The 2010 figures were right about 50 million.  Today will be the 2011 figures.  There should be a reduction, at least for the young Americans on their parents' policies to age 26.  We'll see.

One of the delivery system reforms in the health reform law is Accountable Care Organizations -- groups of hospitals, doctors, other providers to come together to provide complete care that is coordinated and patient-centered -- and, hopefully, saves money.  Previously, this was done as a pilot program, and the results will be published today.  The main finding is that Accountable Care Organizations save money.

Last week-end, Mitt Romney said he would keep the good parts of the health reform law, like coverage of people with pre-existing conditions.  However, apparently, this only applies to people who have not had a gap in coverage.  If you have had a gap, or if you've never had insurance, your option would be a high risk pool.  Twice as expensive, lifetime limits -- high risk pools are no answer for us.  Please, people.  Read and think for yourselves.

Fish oil pills don't prevent cancer.

The top 10 finalists in a scientific photography contest -- don't miss this.  These are stunningly beautiful. 

And that's it for this morning.  Have a great day!  Jennifer

Tuesday, September 11, 2012

Tuesday Tidbits

The health reform law will make it easier for individuals to shop for, and compare, insurance.  That has touched off a wave of marketing as companies compete for markets they never aimed at before.

Mitt Romney is really struggling over health reform these days.  He wants to tack to the center, supporting things like coverage of pre-existing conditions, but the GOP base hates, with intense passion, anything to do with health reform.  Rick Santorum always said Romney was the worst possible person to go against President Obama on health reform because of Massachusetts -- but it may be true not only for that reason, but because Mitt Romney really isn't against every aspect of health reform.  But will he ever stand up to the right of his party?  When they got upset about his warming towards parts of the law, he immediately reaffirmed his vow to repeal health reform day one.  Meanwhile, former Obama health advisers issued a report that tells us what Romney/Ryan's Medicare plan would cost us -- and they now say they were being kind to Romney.  And then there's a new report from the Kaiser Family Foundation that also says it would cost seniors thousands.  It's fair to guess Governor Romney doesn't agree.

An Epidemic of Absence -- a new book on allergies and autoimmune diseases makes the case that getting rid of too much bacteria has weakened our immune systems.  I tend to buy this.  Why else is it that richer countries have higher incidence of Crohn's, MS, etc.?  Now, if only we could be cured by rolling around in the mud!

The US Preventive Service Task Force says testing for ovarian cancer is ineffective and generates too many false positives.  In fact, this isn't news -- the panel has been recommending against this test for years, as has the American Congress of Obstetricians and Gynecologists.  Hmm.

The government is beefing up suicide crisis lines for military and civilian.  Call  800-273-8255.  36,000 people die of suicide each year.  The goal is to save 20,000 of them. 

Every second counts when trying to open a blocked artery.  The technology is amazing, truly. 

Local health offices are going door to door, preaching better health.  Some say newsletters and dropping in isn't enough -- but isn't it better than nothing?

When children learn a musical instrument early on, they have long-term benefits, even years after they stop taking music lessons.

Steroids for children may stunt their growth.  This includes kids who use steroids for asthma.

And that's it for this morning.  Have a great day!  Jennifer