tag:blogger.com,1999:blog-6909222850906563288.post1504445786954182058..comments2024-03-10T11:29:12.088-07:00Comments on Advocacy for Patients with Chronic Illness: Caring for Multiple Chronic IllnessesAdvocacy for Patientshttp://www.blogger.com/profile/05587406553911123626noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-6909222850906563288.post-24762449658146135142012-06-23T10:23:43.419-07:002012-06-23T10:23:43.419-07:00I want to add I was found to have Eagle's synd...I want to add I was found to have Eagle's syndrome which if calcified ligaments in the jaw as well as recently diagnosed with mast cell activation syndrome which is an allergic reaction at a cellular level. I was rearended from a car going 55mph and I was stopped. I got whiplash. I now have a problem with overstimulation. I can't handle noise, smells, lights, colors, and too much going on at a time. I'll get a migraine, have uncontrollable vomiting which may trigger an asthma flare-up;ibs flare-up; and fibromayalgia flare-up. I go to court for disability this month. My big thing is prevention while trying live my life the best I can.Kellynoreply@blogger.comtag:blogger.com,1999:blog-6909222850906563288.post-47255773238598602202012-06-23T10:13:04.445-07:002012-06-23T10:13:04.445-07:00I have diagnosed with fibromayalgia, ibs, endometr...I have diagnosed with fibromayalgia, ibs, endometriosis, chf, hx of pe, asthma, duopacemaker with defibrillator, 10 abd surgeries regarding ovarian cysts and now have chronic abd pain some of which is caused by tearing scar tissue. The last surgery they had to dissect my organs to get to the torsion of which I felt no pain due to scar tissue. I have migraines and various types of dizziness and vertigo, nausea, degenerative disc disease in my neck along with a spur, scoliosis and twisted spine, arthrosis and arthritis throughout low back and other joints. I'm now have disassociation with pain and physio-psyciatric stress tremors which has impeded verbal skills and ambulation. I also have ptsd from experiences in hospitals. My doctors are frustrated with my need for more of their time than any other patient in their practice. I'm 45 yrs old. Doctors often feel like I'm mentally ill or I wouldn't be this sick and that I should have anxiety in regards to new pain and issues even though I've had so many close calls with death. Can anyone help? I'm so tired. kka032167@yahoo.comKellynoreply@blogger.com